Since its inception, Dani’s Foundation has prided itself on providing assistance to patients; working to educate the public on the symptoms of pediatric sarcoma with the intent of seeking earlier detection and ultimate survival and organizing an effort to fund research that will find the cause and the cure for Ewing’s Sarcoma and the other forms of pediatric sarcomas that are affecting and taking the lives of children and young adults.
Below is an overview of the foundation’s current programs:
Patient Assistance: The Foundation is committed to providing information and resources that will keep the pediatric sarcoma community abreast of all information pertaining to diagnosis and treatment. This information is posted and updated on our website (www.danisfoundation.org).
As of 2010, the Dani’s Foundation Board of Directors voted to approve the development and implementation of a patient assistance grant fund due in part to the many requests that we had been receiving from the pediatric sarcoma families and those Colorado social workers who were struggling to find the resources needed to assist their patients. Due to the current economic crisis and lack or loss of medical benefits, the numbers of medical financial need cases are increasing monthly in the State of Colorado. (Please see below for information on the Patient Assistance Grant Program.)
Education: As f August 2010, Dani’s Foundation has released its pediatric sarcoma community education program (STOP LOOK & LIVE) to the Colorado education community with the intent to educate those who deal with children on a daily basis and primary care physicians and pediatricians on the symptoms of pediatric sarcomas with the intent to educate them on the symptoms and encourage their active participation in medical treatment should symptoms persist for longer than a few weeks.
Research: Since its inception, Dani’s Foundation has provided over $238,000 in medical research grants to those scientists who are seeking to find better treatment protocols for all pediatric cancer patients and to those researchers who are seeking to find the cause and the cure for Ewing’s Sarcoma and the other forms of pediatric sarcomas that are affecting and taking the lives of children and young adults.
For information on how you can lend your assistance to Dani’s Foundation, contact the Foundation offices at 303.601.1881 or email to martha@danisfoundation.org.
BY WORKING TOGETHER,
WE CAN MAKE A DIFFERENCE IN THE CAMPAIGN TO END PEDIATRIC SARCOMA!
DANI’S FOUNDATION PATIENT ASSISTANCE GRANT PROGRAM
Offering A Hand Up During the Pediatric Sarcoma Battle
The problem to be addressed is the lack of financial resources available to the pediatric sarcoma population in Colorado. Due to the current economy, the limited and/or lack of medical benefits of those patients in need, and the cut-backs and/or the elimination of social and non profit programs, many patients and their families are left without financial assistance opportunities when they are most in need of support.
Dani’s Foundation is working to offer hope – in the form of financial grants – to assist those patients/families, who are most in need of support, so that they may spend the majority of their energies on battling pediatric cancer vs. worrying about paying outstanding bills.
As of March 2011, The Dani’s Foundation patient assistance grant fund will provide immediate financial assistance to pediatric sarcoma patients and their families who have short-term financial needs that cannot be met by their income and/or other public or private programs in the State of Colorado. We believe that even a small amount of assistance, carefully used, can have an important effect on someone’s life and help to lessen the burden when dealing with a pediatric cancer diagnosis. It is our intent to contribute to the ultimate well being of the child and his or her family so each person can turn their energies into battling the disease and focusing on survival.
The Dani’s Foundation patient assistance grant program will provide once per year financial payment (up to $500/patient/year) paid directly to the patient’s vendor for such outstanding bills as medical needs (treatment, therapy, dental procedures, medications, medical equipment, etc.); medically related travel (to get to and from doctor and or hospital visits); emergency lodging (for the parents or other siblings while the child is being treated at the hospital); and other basic needs including rent, mortgage and utility assistance, daycare and other items for the basic health and well being of the patient and/or family.
Per our program’s guidelines and application process, we will work with doctor/hospital social workers and our own committee of volunteer professionals to insure that all grant requests are valid and truly based on financial need. Once approved, payments will be made directly to patient vendors. No funds will be given directly to any patient and/or parent or guardian.
To access a copy of our guidelines and application for assistance
